Oh lucky me, I get the condition that has no cure and a really weird name.
https://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/symptoms-causes/syc-20354357https://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/symptoms-causes/syc-20354357
Five years ago, I ended up in the ER in intense pain. The diagnosis was ICS, which I was actually grateful for, one of my cousins died of bladder cancer that was diagnosed too late, so I was relieved it wasn’t that. Mostly I need to avoid acidic foods or drinks and all is well. Till coffee
I love coffee. I drink a pot of coffee every day. I get cranky without my coffee, and then I get downright mean
Coffee is high in acid content. NOOOOOOOOOOOOOOOOOOOOOOOOO
It’s been quite awhile since I had a flare, and this weekend made up for lost time. Monday night I eneded up in the Emergency Room because a kid can only take just so much pain before the tears get to the Bear and he hauls your ass to the car and drives to the hospital. At 1 am. We got home at 10;30 Tuesday morning.
I’m still sore, and tired, and I still want my damned coffee. I’m taking something called Prelief, and it’s sort of working but seriously, I need my coffee. A CT scan revealed nothing major wrong, but I’m seeing a urologist anyway and taking massive doses of antibiotics, and Azo for pain (which makes you pee bright orange – it’s one of the only amusing parts of this nonsense)
I DO NOT HAVE TIME FOR THIS NONSENSE!
I am a terrible patient, I do not do well on the disabled list. Pray for Bear.
Suziecreamcheese Sings the Blues 
So sorry that you are experiencing this.
I’m not a coffee drinker but I do need my morning cup of tea. The few times I have coffee, I am wired for hours! If it’s the caffeine that you need, can you switch to a low acid coffee or other caffeinated beverage?
At least the orange pee is amusing. 😐
Prayers for you AND Bear.
LikeLiked by 1 person
Unfortunately caffeine isn’t the trigger as much as the acid. And yea is worse than coffee there. It’s just frustrating, I’ve been fine for five years and here we are
LikeLike
They have a coffee flavored possum, would that work? It’s a cereal beverage my grandmother use to give us kids :).
LikeLike
I never heard of this. Tell me more
LikeLiked by 1 person
I find it in the grocery store, it’s called Postum (not possum, it’s an argument I have with auto incorrect :P) it should should be in the coffee and tea isle somewhere. I think it’s good, I loved it as a kid and loved sitting my grandmother drinking it. That was what she drank as well. There is reg flavor and coffee flavor. I don’t think it has caffeine tho and I imagine that is what is making you cranky :P.
If it’s not in the grocery store you can probably find it on amazon, I mean they carry everything.
LikeLiked by 1 person
I remember my mom drinking that! I’ll check it out – it’s not the caffeine that bothers me, it’s the acid. But …. I tried an ice pack this evening and praise the Lord, relief!
LikeLiked by 1 person
I love ice packs!!!
LikeLiked by 1 person
Heat is usually my friend but that made it worse so I tried ice and oh my!
LikeLike
I like heat too, but ice seems to be good for so many things too!!
LikeLiked by 1 person
If something is inflamed, heat tends to make it worse. I was told that by a nurse and it makes sense
LikeLiked by 1 person
I am so sorry for the ordeal! Sounds like you are starting to feel better, yes? (Except, of course, for that bout of decaffeination and consequent homicidal tendencies).
LikeLiked by 1 person
Someone who understands lack of caffeine!!!! I found this stuff called Prelief that eliminates acid in food and hallelujah, coffee! It’s slowly getting better. I see the urologist is a couple of weeks and I think I’ll have a better idea of where to go from here. And I’m still peeing orange! 😂
LikeLiked by 1 person
Isn’t AZO also used for UTI’s? The only problem is the orange color can stain your underwear if you leak. I have to use Panty liners when taking that stuff.
LikeLiked by 2 people
Yes, it’s for the pain and burning. I wear old undies when I take it. My family doctor told me to take it because I’m still “tender.”
LikeLiked by 1 person
Ugh, my mom suffered from this condition for years. You are right that it is miserable. The good news is it spontaneously went away one day. Do you need to watch your sodium? My body doesn’t handle acids well, so I sometimes manage my ph using baking soda in place of salt. What if you used alkaline water to brew your coffee? Might it help?
LikeLiked by 1 person
Those are great suggestions. I was diagnosed inn2019 and had no problems till last week. I think it was an overdose of OJ and coffee that threw me, plus I have a raging UTI. It’s slowly healing and I’m grateful for Prelief
LikeLiked by 1 person
Yes, that sounds like a recipe for pain. Ouch. ☹️
LikeLiked by 1 person
It’s thankfully clearing up
LikeLike
👍
LikeLiked by 1 person
I completely understand. I was diagnosed with IC in 1995. The older I get the worse my bladder is. I have a blog also where I write about my experiences and research I’ve done. If you see anything new that helps, please reach out and share. Thank you.
LikeLiked by 1 person
D-mannose. It’s really helped me and seems to be as good as antibiotics for UTIs
LikeLiked by 1 person
Thank you Suzie. Best of luck to you regarding your health! I am hoping one day there will be a cure for Interstitial Cystitis!!!
LikeLiked by 1 person
Hope you are doing well. I was diagnosed with Interstitial Cystitis in 1995. I am also so tired of dealing with these horrible symptoms.
LikeLiked by 1 person
D-mannose and aloe are very helpful
LikeLiked by 1 person
Suzie, thank for the suggestion.
LikeLiked by 1 person
Hope you are doing well. Interstitial Cystitis is a difficult disease to treat.
LikeLike